Monday 31 March 2014

Memory boxes

So I wanted to share with you all the beautifully decorated special box I recieved through the mail. Now I don't usually plug products, but I thought this was pretty special and seeing as a large amount of people who read my blog have had transplant or know someone who has had one, I thought I would be doing the transplant community a favor in sharing this box.

This amazing memory box is made by Kati, Kati is fellow cfer and transplanted Oli Lewington's wife. It's fantastic quality perfect size for a mixture of my 2 transplant memorabilia.

If your looking for that special gift to commemorate a transplant, this has got to be it!

She does all sort of organ related boxes, baby, wedding or even custom made.

So if your looking for a special memory box transplant or otherwise I defiantly suggest

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Sunday 9 March 2014

Magazines, speaking and training

Life at the moment is fairly busy, iv been doing a fair few magazine articals. The first of which was out last week.

Me and Katie gammon who recieved our transplants the same day and appeared on day break together were featured in Love it magazine!

I am also featuring in Top Sante a women's fitness and wellbeing magazine. Me and my mum made our way up to London last Friday for the photoshoot. I had hair, make up and got styled into a beautiful dress. You know the type you shouldn't even think of food in! Especially if you have cystic fibrosis. Which was extremely hard as lunch was catered before the shoot! Let's just say I saved the pudding till after :-0

I'm in Junes issue.

Here's some shots of me at the studio.

Me and my mum then went for dinner at a Mexican place and stayed over in a hotel. It was a lot of fun.

I'm hopefully receiving a copy of these pictures for my new website this is my professional website for my public speaking and tv presenting. Which iv been spending a lot of my time focusing on. I joined toastmaster in February to try and improve my delivery of my speaking and have since completed my first speech and won my fist table topics. Toastmasters is a group where you go and work your way through a book on different speeches. It's a fun, welcoming group and I have to say in 3 meetings I feel iv come along leaps and bounds and I'm working my way towards competing in competitions. This could really boost my career because who wouldn't want to hire a award winning speaker, right? (That's if I win ;-)) plus it's just really fun and has made be realise how much I enjoy speaking and it's what I want to do.

Iv realised speaking is so much part of who I am, possibly because I get so nervous, usually my nerves come from a deep fear of failure in something I'm really passionate about. If I wasn't passionate about speaking the nerves wouldn't be there. It's really exciting when you realise finally what your suppose to be doing in life and have goals to aim for.

Lastly my training at the gym! I have been working really hard to regain my fitness and exceed previous levels. I'm doing a lot of weight training, flexibility training, pole training, hoop training and cardio too. I want to be the best I can get to, because i believe that fitness has played such a huge part of why I'm still alive and have recovered well each transplant. Having muscle got me through ecmo and ventilation with out the strength in my intercostal muscles I might not have ever breathed on my own, with out muscle memory it could have taken me months and month to walk again, I could have been left unable to walk! After my second transplant I was up the second day, I can only attribute that to the perfect lungs inside of me, the doctors and the muscle mass I had still maintained, despite the fact that before the transplant my oxygen levels and c02 levels were so bad I couldn't move of the bed. So I guess I'm saving muscle because you never know when you might need it on a rainy day. Also I am Determined that this year I will be at the transplant games! I'm starting to work with Exeter university to become the fittest I can to compete, in the most efficient safe way. Here's a few of my training pics.

Me and Lou Lou at the gym, back arching for back arch march.

My best ever back arch, I didn't realise I was this bendy! Iv always been flexible but my back I thought was my weak point!

My top I got made for the gym :-)

Don't worry guys I'm not going to become a muscle bound hulk, it's not in my genetics ;-) feel free to add my Instagram I upload all my training on to there along with pictures of my pooch and everyday life @ktbutterfly

Lastly you might have seen the badge at the side of my blog, I'm no 10 on top cf bloggers :-)

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Thursday 6 March 2014

Transplant troopers

So I have been very busy here's one of the projects iv been really busy with Transplant troopers calendar a vintage calendar featuring transplant recipients and those still waiting for transplant.

I'm one of the four girls organising the calendar, on the team is Victoria Glenn, Charlotte Davies and rachel Prosser.

Here is a sneaky peak of my month, which we have released. The final one is different form this and even more exciting so you will have to buy the calendar.

It's released in August. Our website is and our Facebook group

I would like to give credit to

Matt Austin - photographer

Make up - kylie bosense

Hair - Jessica Littlewood

Venue - barnfield theatre

This photograph will be featuring in Devon life on the 13th march

I will be updating my blog in the next few days on a few other things iv been working on including, two more magazine articals, a photoshoot, my website, toastmasters and my new training schedule!

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