Tuesday, 1 February 2011

Hospital

Well i know i said i probably wouldnt blog till after my app but alot has changed. I am in hospital on oxygen, i got brought in yesterday by my nan and grandad, very poorly. I was struggling to breath, heart rate was extremly high 160 at resting sats in 70ies on popping to the loo resting at 86% temp 39.5 after paracatamol. So i guess i left it to long. I feel really stupid for not starting IVs sooner and rung my cf nurse in tears yesterday worried harefield would not assess me in this state. Iv had lots of phiysio, nebs and the 02 has made the world of difference. Im still goin to my app but will be ambulanced up 2mz morning with my mum, they said i prehaps shoud wait till im well bit my team said, i have such a short window of time when im well i could end up waiting a long time and missing my window of oppertunity.


So thats all for now.
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13 comments:

  1. Anonymous1 February 2011 at 04:17

    Crossing all my fingers and toes sweetheart x

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  2. mogzi1 February 2011 at 04:24

    Hope the assessments go well!!! Sorry you got so poorly. take care x

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  3. Tori1 February 2011 at 04:44

    Good Luck lovely xx

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  4. Gem1 February 2011 at 06:40

    Keeping everything crossed things go well tomorrow! x

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  5. Ruth Jay1 February 2011 at 07:59

    So hoping it all goes well for you tomorrow xx

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  6. Tracy Bennellick1 February 2011 at 10:21

    Will be keeping everything crossed for tomorrow. big hugs xx

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  7. mads1 February 2011 at 17:18

    keep strong hun. i'll be thinking of you x

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  8. Josie2 February 2011 at 07:06

    Dear Kirsty, I have been following your wonderful blog, and wishing you all the very best for your hospital appointment at Harefield today. They are a wonderful team, and hopefully will get you in asap to do the full-on assessment then get your name on that list.
    Take care, thinking of you and stay as strong and positive as you have been Josie xx

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  9. Anonymous2 February 2011 at 08:07

    I´m a stranger I know but read your blog and you went straight into to my heart. I wish you all the best ..Hugs

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  10. Anonymous2 February 2011 at 08:08

    Dear Kirsty, my friend died last year from cf. From my experience I think when you are feeling better you should go for the app a.s.a.p. If they find anything else wrong with any other organs they my refuse the op. Just talking from my own experience so please go for it. Good luck.

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  11. Anonymous2 February 2011 at 10:03

    Dear kristy, I came across ur blog and and u are an amazing person with a awesome strength I will keep you on my prayer and hope you get well soon I'm 23 also have Cf I been in ur place with sats going soo low and stugguling to breath I hope everything comes out well and will keep following your process

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  12. Corinna Bearman2 February 2011 at 11:48

    Dear Kirsty, I have only just read your blog as it was posted on my wall by the CF Trust. I have read through it and am seriously struggling to hold back the tears. My 11 year old son has CF but you are such an amazing inspiration and it gives me hope for him and makes me more aware as to how much support he will need from me in the future. For opening my eyes a little more, thank you. I am praying that your first appointment today has been possible and has gone well. I am thinking of you Kirsty and will continue to follow your blog from now on. I really hope you are feeling a little better. Thinking of you. x

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  13. Hannah2 February 2011 at 12:47

    Hi Kirsty,
    I have CF, am friends with Emily and followed you here from the cf trust forum.

    I love your blog and the way you write. I hope it goes well tomorrow. Thinking of you and hope you feel better soon, Lucy x

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