Tuesday, 24 April 2012

And you have just been Kirstie'd

So today, day 2 of the charity ball company Attack! Yes me fully armed with my mother went round business's of Exeter trying to sell company's a 'coporate table' basily a table of 10 discounted ot £450. The Key to an interesting business that makes me want to sell you tickets, 1. a intelligent, vibrant and on the ball receptionist 2. A bit of flash your cash, in other word make your company smart pretty its all about presentation 3. I know in the first 5second if your intrested, your tone is crap, your eyes aren't engaged.

These aren't just important for me selling you tickets there also key to why your business isn't doing as well as every one Else's on the road and let everyone know not to go there as other people obviously aren't.

We hit about 20 company's fully armed with the organiser that is my mother, she brought the file of intresting bits of paper, We had ECMO pic, A letter of information on whys, hows, wheres and A ball poster. Then there was me, hitting the facts out, telling the story and engaging where ever I could.

Its hard running a Ball especially in the financial climate, but without the events like this Charity's would be now where.

So here I am trying to sell to you. Do you believe in organ donation? Do you enjoy a good party? Like to dress up? Well what are you waiting for? Its time to buy you ticket now!! You may be thinking its a awful lot of money, but for what you get is it really?

Its going to be an amazing night and will end National Transplant Week. Please support me, support Organ donation. If you've been reading this blog surely you know by know how important it is, if not well I don't think you've been paying attention so I will just have to shout louder!
To buys a Ticket email me on kirstiemills@hotmail.co.uk

Money for tickets need to be in buy the end of May.
Please listen out for me on heart radio tommorrow morning talking about ODR.

I would also like to say if you are a transplant patient in the Exeter area and would like to get involved in the ball or other projects I have going please email me on kirstiet@lltgl.org.uk I am looking to build a strong team to help make the south west count when it comes to ODR.

Sunday, 22 April 2012

Advocates weekend

Ok so this week I had to get a cough swab in to see if I was still growing pseudo, the reason? The Advocates weekend. This is an event I got told about just after my transplant, I was told if I decided to become a advocate from ambassador of Live Life then Give Life then I would go to the advocates weekend. So as an advocate I started to look forward to the event. Meeting lots of people I had talked to online, many I had received advice from and also who I looked to for inspiration when raising awareness.

Friday was the day I was suppose to head to London, but my sample results hadn't come back. 3pm came and I received a text all clear! I couldn't actually believe it. I was convinced It was going to be pseudo.

I headed home from the gym with Stu and started the manic pack to leave for Emily's chief exec of LLTGL as we would head for the hotel the next morning.

The weekend, well It entailed lots of talks from the trustees of the Charity, discussions on ideas, what we as advocates should do and how the trustees can help us. We also discussed up and coming events and individual projects we have, such as my cycle ride and the Charity ball. Please email me on kirstiemills@hotmail.co.uk for ticket info. There was discussions on what we were putting money into as a Charity such as the perfusion machine, speakers project and Robyns rainbow. Do you know you could nominate anyone for a Robyn's rainbow who is involved in transplant and having a tough time. I received one when I was waiting for my transplant nominated by another CFer waiting Sharee Mcphail. I'm glad to say she is also post transplant now and received hers around the same time as me. A Robyn rainbows is a balloon with the intention of letting the person know you are thinking about them in there difficult time and hopefully make them smile. Maybe you know someone to nominate.

Also there was lots of laughs and giggles and we all had dinner together, still the main topic being organ donation.

The weekend was intense, Lots of information to process and ideas to thing about. I feel like I have had the fuel injection I needed! I am ready to go, hurricane Kirstie Is back. I'm ready to create a Storm!

Sunday, 15 April 2012

What Iv been up to

Its been a while since I blogged, so I thought I would come and tell everyone what Iv been up to.

My lungs are on there way back to best. My lung function in CF clinic was 98% 101% the figures are slightly higher on there machine so I'm not quite back best but pretty damn good. I feel pretty good health wise although I still get odd wheezy patches, so I know the fungus is still lurking around, trying to P me off but not succeeding.

I have been getting back to the gym the last week and have to say, I have been pretty miserable without it. I've found motivation hard, but as soon as I got back in there I realised what I was missing and how much better I felt for going. Its a therapy to me. It makes me feel happy. If I'm stressed a good work out does the trick.

I've had problems with magnesium and had to have a infusion for a day, pretty annoying as it was on my day off and I spent the whole six hours in the hospital.

Other things Iv been doing, well I'm getting into doing nails for fun. I like doing funky manicures and nail art. I find it really therapeutic, Its something you kind off switch your brain off to everything else and have to concentrate on the one specific task. Here's a few pic's.

Other than that, Iv been working and had some lovely days off, I went rock climbing with Stu and the twinners, The twinners are SAM and Simon Holmes, there both twins and Simon was Stu's best man at our wedding. We had a great time messing around. We then went to woodbury and I went to the gym while they played golf and then we all met in the swimming pool and did silly things like trying to swim the full length of the pool under water. I was a meter off with a dolphin swim, I can only do a dolphin swim as i need to hold me nose. The boys could all do it on a normal but could barely get half way on a dolphin swim. So I'm going with I won ;-)

Then me and Stu went round to my best friends Julie's and had dinner with her and her partner Sam who Iv also known for years. We had such a good time and ended up staying late and having a drink and getting a taxi back. I think Stu and Sam are going to have a bromance, they get on so well and its scary how similar they are! Julie and Sam have been together a few more months then me and Stu but we haven't done alot as couples together, defiantly something we will do more of!

I also went to a pole Jam last Saturday and then held my own on the Sunday here's a few pics.

Then today me and Julie walked Kia down the beach and in the woods and played around with instagram!! I'm going to see it I can link intagram with my blog like I have twitter, but otherwise theres lots of fun pics of us on there!

There been a few other things going on, things that have made me very sad, My friend Alan who I blogged about before Here passed away. He never made it to America. Alan was a huge support for me when i was being listed and he was going through the same process, unfortunately it never worked out for Alan and he had come to terms with fact that with out one he was going to die. It seems very cruel that it should work out for me and not him. Alan was a great support to many with CF and will be greatly missed.

Also I just want to link you to this blog, another friend of mine, if you read its all self explanatory Ellis.

Iv been stuggling with some other stuff, but things im not ready to share with the everyone, somethings have to be kept private until I am ready.

Well next week I'm only working two days!! The rest I'm having off with my hubby, I'm hoping we get to do lots of fun stuff!