|the photos don't really do her justice|
|Pink \butterflys dotter all over her!|
I'm currently in hospital, starting my Bi-pap at night and getting some rest and have been since Monday, I'm going to be in till next Monday now as I just need to rest and leave a little less shattered, I'm not expecting miracles while I'm in here.
A topic that has come up while in here was life expectancy, It wasn't really a deliberate conversation, I never asked because I guess its something I think I maybe already knew, but it has been mentioned that if I carry on the rate of decline I'm likely to live only another 6months. For me I know this is only based on a educated guess, you can never know when someones going to die and especially with CF, I could catch a nasty infection tomorrow and that could be the end of me or I could stabilize and carry on to live a maybe even a couple of years. So for me when they took this educated guess, with there statistics, I think they forgot to factor in my determination. That on its own stands for alot.
Hearing that 6months has done a number of things, made me for determined then ever to stop the lack of organ donors, I need to make sure this doesn't happen to someone else in the future, this uncertainty and the fear that that transplant wont come in time. Its also made me want to enjoy every last minute with my family.
So Ill leave this post, short and sweet, straight to the point, sign the organ donor register and get everyone you know to.