HOME!!!

So my Hubby travelled all the way to London for the day and bought the dog with him. I was so happy when I woke Thursday morning and text him to find out when he was setting off for his 3 hour journey, to which he rung me and told me he was about 20minutes away.

I dropped everything and rushed to beautify myself and make sure I looked as pretty as possible as I wanted him to be happy to see me and not forget what a wonderful wife he has while I’m away.

We went for breakfast and I finished off my neb regime, which is now even more ridiculous. 9:00 Pumolzyn Hypertonic, NAC, Atrovent, Salbutamol, Tobi, 14:00 NAC 18:00 NAC 22:00 Pumolzyn Hypertonic, NAC, Atrovent, Salbutamol, Tobi!!!

Then we went for a drive to find Ruislip Lido, I'm getting pretty good at finding my way around London without a SAT nav but I think we ended up in the right place by sheer luck this time as my directions were awful. We walked around the lido, with the pup and chilled in the sun. 1.2 miles around the lido and then we were off back to hospital for my IVs and neb.

We then headed out to lunch, I had a nice Thai chicken curry and most of a massive dessert, rock road covered cookie!! It was huge.

We went for another walk around the lido another 1.2miles and then before we knew it, it was time for Stu to head back. I was so happy to see him but he reminded me that he had Saturday afternoon or and Sunday afternoon and there was a big family get together for his brothers engagement, which I was missing this weekend so I was gutted.

So that evening I walked my friend Neil around the hospital, with his Mum Cath. He was at the hospital for assessment which went really well. I wore a mask the whole time, so I didn’t catch any nasty’s. We used to always mix pre TX which is very naughty of us and I don’t advise it to anyone, but we were always careful when it came to coughing ECT.

The Friday morning bright and early I was taken to the theatre for my third bronch. I warned them my throat was quit damaged and sore, so could they be extra careful this time. I have a large haematoma at the back of my mouth/throat. Off I went to sleep counting down the mils of propafol. I got down to 7mls!!

I woke up this time, no pain, no aches and my 02 being taken off straight away. I knew things were much better. I was wheeled back to the room; my mum was on her way. I decided I needed to get up and dressed and head to get something to eat. A vast improvement each time!!

Once I came Back I got the great news, I was going home that day!!!! My Broch was alot easier to shift and my lung function is up to 87% and 92% roughly another 10% to go but a vast improvement. We waited around for a few things and then hit the long road back to Devon, me chilling in the passenger’s seat with my sunglass’s and shorts. Home to my Husband and Puppy.

Bronch Bronch and more Bronchs

Well, I was re- bronched Tuesday and was hoping I would be sent home today. Things have not gone well. The bronch was far less painful; I think I was given some form of opiates. When I came round this time I was far less distressed although very tired and sleepy, but I was tired before my bronch. No throat swelling this time or vomiting, thankfully.

Two hours after I was ready to head out, I needed to see the sun and feel it on m skin. The sun always makes me happier unless I’m not in it.

I briefly saw my consultant in the canteen and she told me 'no wonder you can't cough your sputum up its it like cement' But that was all I heard, so I didn't have a clue what was going on till this morning. I hate not knowing, not knowing if I was going home, when I was going home, would it be Wednesday or would they decide to keep me in.  I had spent all of Tuesday hanging around in a grump not knowing what was going to happen, finally Wednesday came, The consultant came around and instantly I was told my flem was far too thick and they had a real hard time hovering it out of my lungs and despite feeling better for it I would feel rapidly worse if they didn't hover it out again.

I’m now on salbutamol 2-4 times a day atrovent 2-4 times a day NAC 4 times a day Pulmozyn 2times a day, hypertonic 2 times a day and tobi two times a day. Yes hefty Neb regime but I need to clear these lungs. My right side is the side that’s filling up. I’m worried about it now. Will I get rid of this fungus? I’m also on IV antibiotics to keep my pseudo at bay which is apparently still lurking around and yep I’m being re bronched Friday,

I have been so moody this last few days, me and my mum get on each other’s nerves after being together for too long, she’s my best friend but when you have to spend so much time with someone in a confined space than your both bound to get niggly. Today my body is an aching mess, my neck, shoulders and back are hurting. My jar feels like they dislocated it and my throat is a mess. Bronchs may work but they are a painful way about it. I feel the aesthetic is taking a toll on my body. I have propafol the same stuff Michael Jackson was having and I will tell you now, I don't know what he liked about it. Waking up with a hangover is not my idea of fun.

So tomorrow, my wonderful hubby is driving up to see me for the day with our puppy. I’m soooooo happy as I miss them both so much, we both disgusted how we didn't think we had the money with me not working but I think we both decided it was beneficial to us and we needed to see each other, As grump bum syndrome was taking us both over.

I’m very sorry to anyone who has had to put up with my bad moods, but it’s really hard being away from your husband, your other half and not feeling well. There’s nothing you can do but sit around and yes I am worried, I’m worried what this means, whether I’ll get rid of it? Will I be a permanent wheezy mess unable to exercise? I’m going to have to reschedule my EMT(exercise to music) course now as there is no way I’ll be back the weekends and I don’t think I can catch up on that much practical, even If I could make it back, my lungs aren’t going to be up for it. I feel devastated and scared that maybe this won’t work and I won’t get back to my best.