Saturday, 17 September 2016
Shattered glass affect
So I had my bronch last week and the result came back with Acute Rejection, this was the Clouding on my CT, also known as shattered glass affect a term I feel describes the feeling on my whole body currently so it has become the title for this blog.
I have to say this hit me fairly hard. My lung function was its lowest since receiving my second transplant at 40% the inflammation processes in my lungs made everything feel pretty tough. I was still recieving treatment for my organised pneumonia which is also a inflammation immune response in the lungs so it felt pretty frustrating that I then had actue rejection on top of that and my chronic rejection.
I recieved 3 days methyl pred, it didn't quite have the enitial impact I was hoping for but the idea is that acute rejection is treatable and reversible. Hopefully in the coming weeks things will improve.
So I decided while in Harefield I would take part in the Harefield 5k fun run. I say run because that's the title but in no way did I run. I walked and I struggled but I'm so proud to say I completed it. I think anything worth doing is going to be hard.
My little team, my niece and husband who walked it with me.
If you fancy sponsoring me for my efforts please pop over to www.virginmoneygiving.com/Kirstietancock1
Since I came home things haven't been great in all honest. My lung functions up and down but still pretty rubbish overall and I have had a few new medications added in to try to prevent these inflamation processes in my lungs. The side affects have been rough and I'm just hoping my body will start to adjust.
I feel like I'm not in my body any more, the muscle waste is very apparent in my legs, I feel thin and very withdrawn. I know I'm losing more weight with the high doses of prednisalone despite eating a fair good diet. My stomach is very bloated and uncomfortable. The exhaustion is relentless, mentally and physically. On top of this Stuart has had the week off and he ended up having a operation on Thursday night due to appendicitis. Stuart is never Ill and I hated seeing him in pain. No matter how minor we hate to see those we love struggle. He constantly told me to go home and leave him there as I was clearly struggling with my energy and breathing but I wanted to be there with him like he is for me. I did as much as I can. Today we're both resting, were a right pair! He's in pain and Iv had episodes of vomiting from my new meds along with severe shakes. Still were here together and that's what matters.
Along with this I had the extremely sad news that my friend Kate Hennessy passed yesterday. I haven't said anything about this as I currently can't find the words. I hope those who know her know its out of sadness that I can't seem to express this and I want my words to do her justice.
I know this is probably not the radiating positive blog people hope for, sometimes though all there is, is the truth. Things suck alot right now. I'm ok with everything in my mind and know I just need to conserve right now, in the hope for better days very soon.