Saturday, 7 September 2013


I have had a short break from my blog, so I apologise to those who have asked for updates. The reason for my break was to take time to heal, reflect and recover. Although I'm writing this it certainly doesn't mean I have finished that process, post transplant recovery take months, some say your not recovered physically for about a year, emotionally I guess everyone is different, but I don't know if we ever truly recover from near death experiences although they do get put to one side and for us to carry on life in the most 'normal' way possible. As I said in a previous blog before my chronic rejection set in I felt the most recovered and 'normal' as I would ever get. Now my goal is to get back to that and rushing emotional recovery isn't something I would ever do.

So where am i now? I am out of hospital I have been for a week and a day, it's been 4 weeks today since my transplant, 4 weeks since some stranger once again gave me the gift of life, 4 weeks and some where there is a family out there grieving, please think of them and wish them peace and my donor rest peacefully in heaven.

I am at my nans with my husband while I recover and we look for a house, our first house to buy. It's so exciting and at the same time scary, it's such a huge decision when looking at houses whether we are going to pick the right one for us. I can't tell you how happy I am that I have such a normal worry such as buying a house!

Physically I am weak, but no where near as weak as I was the first time, but still I have a way to go, I am walking lots and sometimes I forget to rest in between, my mind thinks I can just go back to how things were before, my body is in need of time, but I know we will get there.

Finally I just want to take a minute to thank you, thank all of you who have supported me, helped my hospital packs in the last few months which will be ready to go out for Christmas. I have been buying lots of fun crafty things and exciting goodies for them and it has provided me with much needed distraction from myself and my own situation. I want to thank everyone who had donated to the packs and to the fund which my friend set up for me personally, I have no Idea what I will spend that on, but I will put it to good use. I also want to thank all the lovely people who sent me cards, present and simple messages of encouragement. These message in those hours of darkness brightened my day and on good days widened my smile. Simple things have such a great effect and I cannot thank everyone enough.

- Posted using BlogPress from my iPad


  1. Wish you Full Recovery and Good Health

    I become aware of the challenges you've faced after watching the BBC documentary just today. I can't even start to fathom the troubles you have been through but one thing is sure that the Power of Your Will has overcome them all. May it continue to do so and May you Heal Quickly

  2. Hi Kirstie,

    I followed your blog through the whole of your last transplant and recovery and for quite a while after. You really inspired me in your strength and passion to make a difference and not let your CF stop you living life to the full.

    I am a Mum and also have epilepsy, I started a blog to try to help other women with epilepsy feel able to start a family and it was this blog that really gave me the idea.

    I have a link to your blog on mine and a few weeks ago I suddenly noticed it again and realised I hadn't looked at it for quite a while.

    When I saw you were going through transplant all over again I have been thinking about you a lot. I know your strength will mean you truely make the most of these lungs to live life and make a difference to so many others. You will make your donor and their family proud.

    I just wanted you to know you inspire people with your strength and care for others.

    Love Clair x

  3. I too watched you on the BBC and couldn't believe your courage. I thought everything had gone well for you and am saddened to hear you have had to go through it all again. I wish you well and will keep you in my prayers.
    Love Maureen

  4. It makes me happy to know that my very simple messages of encouragement make things a little bit easier for you. Thank you! Good luck on the road ahead.

  5. You are one brave lady! People all over are holding you in their hands. Have a blast!

  6. Ur such a wonderful girl who gives hope and true inspiration to all i wish u and ur hubby all the best with ur next step in ur lives im truly so happy for u both even though we never have met the net has surely bought us all together take care Kirstie sending u so much love from here in Australia xx

  7. Yay Kirstie!! Great to read good news. I know the feeling of thinking you can do everything straight away again and then having your body ask you wtf do you think you're doing?! But I'm sure you know your boundaries for now and I'm also sure that you'll get much stronger really soon again, reading all the things you're (still) busy with already again!

    Lots of good luck with recovery, both mentally and physically. Love from the Netherlands x

  8. I'm loving the way the local newspaper just copies and pastes your blog and then calls it their news story. They should be paying you their journalists salary.....

    1. Lol true ;-) I'm just chuffed that my writings being used, but would appreciate my name as the author. Either way It's raising awareness for organ donation :-)

  9. Hi kirstie, I hope ur feeling better 2day. I just wanted 2 thank you for being so inspirational, brave, funny, and so thoughtful of others while fighting for ur own life. I hadnt read ur blog for a while and didnt realise u had another transplant. Since first watching the doco on ur life last year in australia and then following ur blog, I have registered 2 b an organ donor here in Australia, but I also live life everyday as if it is my last. Following ur blog has helped me 2 focus on the positives in life