Thursday, 7 July 2011

ECMO

Hi this is Kirstie's mum again this is just a short blog to let everyone know whats been happening over the last few days.
The team at Harefield Hospital became very concerned about Kirsties condition and talked about maybe putting her on ecmo which is a machine to buy her more time. This has had to go ahead as she got much worse, Kirstie was becoming exhusted. This meant she  had to go on a ventilater, but they hoped to get her off that as soon as possiable, then let ecmo do the work. Kirstie did today manage to get off the ventilater after 24hrs and the doctor was amazed that she had done so well so quickly. But unfortuantely this evening she had to go back on the ventilater as her sats dropped. Kirstie has been sedated and is resting, tomorrow is another day and i am sure she will fight to get off the ventilater again and be ready to recieve her new lungs when the time comes.   
I have the most amazing daughter ever, i have watched her fight for her life and i hope that soon i will be able to tell you all the news we long for.

34 comments:

  1. Wishing her all the strength she needs to keep fighting until a transplant is possible. x

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  2. I Hope Kirstie gets better soon and get the lungs she needs, wishing you and your family all the luck in the world, x

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  3. Thinking of you and praying for awesome Kirstie xxx

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  4. Sending massive amounts of love!!

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  5. Thinking of you with my fingers crossed for good news xx

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  6. Will keep up the prayers for Kristie, her lungs are on the way, God keep her!

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  7. prayers coming from california! waiting for your good news!

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  8. Morning Kirstie,
    Hope you had a good night. Thank you Mum, for giving us a progress report. Like the Doctor said he was amazed you got off the ventilator after 24hrs. We have to remember that you are ill darling, just imagine what you are going to be able to achieve when well. But for now, I think we really have to play ball. We do not need peaks and troughs. Busy doing nothing, slow

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  9. continued..
    slow right down. Control your mind, to control your heart, to control your poorly lungs. Take it slow, is going to be the order, until we get the transplant. I hope this helps. x. Thoughts are with you Kirstie. Check in again, tomorrow. Have a good day' DT.

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  10. thinking of you all x

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  11. Thank you for taking the time to keep us all updated on how Kirstie is doing, especially when it must be emotionally draining for you. Kirstie is an amazing person and we are all wishing with all our hearts that those lungs arrive soon. Love and positive thoughts as always. xxXxx

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  12. XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX lOVE TO YOU ALL

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  13. Thinking of you and sending you lots of love xx

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  14. Janet here from Spain, praying for you every day. Sending lots of love and positive thinking to you and your family. Xxxxx

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  15. Thinking of you all from Georgia (USA) and wishing those new lungs for Kirstie real soon.

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  16. Kirstie may be an amazing daughter, but you clearly are an amazing mother. I cannot begin to imagine what you must be going through; and you are in my thoughts and prayers. Thank you for going to the trouble of adding to her blog, at such a very difficult time for you.

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  17. Thinking of you and have everything crossed! Xx

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  18. You're in our hearts, rest well xx Claire

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  19. very corageous girl. I was never put on ecmo but i do know the toll end stage cf takes on you. I feel so desperate for kirstie and her family. I hope her transplant comes tonight xx

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  20. Am saddened at the news of Kirsty's condition. Thank you for updating us. It can not be easy for you as a Mother! My thoughts and pray's got to you both and the rest of your family! Fingers crossed for recovery xx

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  21. Morning Kirstie,
    Hope you well this morning.I got to mirror the above comments, for your Mum, also your husband, and staff at Harefield - Thank you. Looks like you got a good team, maybe we could sort out a 5-a- side game when you get your transplant! If you are on the ECMO machine, I trust it is looking after you.
    I have been thinking, a healthy person like yourself, will be used to training; reps, running, yoga and stretching (before and after). At the moment, you are going through a reverse scycology(excuse my spelling), you have to stay perfectly relaxed, minimum effort, to relax those lungs. Tough assignment but if anyone can do it, its YOU.
    Stick in there sweet heart!
    Maybe,if your able, catch up on some movies,if the doctor thinks that's ok. Until Tomorrow , be good!
    Have a good day' - Daniel Turner.x

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  22. Pip from the CF fourm9 July 2011 at 01:42

    Thinking of you Kirstie and the family. Hoping and praying so much that your call comes real soon. Stay strong and keep fighting xxx

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  23. Your daughter sounds like a very strong woman. She has one thing on her side: she's young, like me. I, too, am awaiting a transplant, not lungs tho, a liver transplant & I know all about the "Dr. Runarounds", headaches and all of this stuff. When I was first told of all of this, I felt so dizzy and lightheaded at the speed they were telling me all these things, I wanted to vomit.

    You're daughter IS strong, she started this blog to let others know of her condition and to educate the public; that's what my Dr. told me when he read my blog ;-) She has done everything to battle her affliction, as I am doing everything in my power to battle mine. You should share this page, if you haven't already, to @NYPhilanthropy on Twitter. They are very helpful, will help w/fundraising and all that. Their are very kind people out there that will help, you just gotta know where to find them. You're daughter is fighting this and God is on her side & he will hear our prayers for Kristie & she will pull through.

    It upsets me to read this, cause one day soon my mother could be leaving blogs like this one for me while I undergo my battle. My blog is: www.pre-livertransplantjitters.blogspot.com Feel free to leave a comment or tweet. I will watch this blog...Have a Blessed Day!

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  24. Thank you Mum for the blog, think about you all every day and pray the lungs will be there for Kirsty very soon.
    xxxxxxxxxxxxxxxxxxxx

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  25. I wake up thinking about Kirstie every day, so thank you mum for writting the blog. I really feel for you all and cannot even imagine what you are all going through.
    Give Kirstie a friendly hug from me.
    Love and hugs
    Rachel.

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  26. Thinking of you Kirstie and your family and support team including my sister Sarah your CF nurse. Sending you love, hope and peace. Helen in Australia

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  27. Morning Kirstie,
    How we doing this Morning?
    Just been out for sun morn run. Like the early start, the air is a lot fresher. I expect the air down in Honiton, is pure. You will soon, be sampling it sweet heart. I so looking forward for your transplant! How is the reverse psychology training going, I reckon you could pass a few tips over to Jess Ennis, when you are back on your feet! Have a good day', stick in there Kirst, you are an inspiration to us all, I'll clock in tomorrow, hopefully your have some good news for us,
    Thoughts are with you, Daniel.x

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  28. Thinking of you big time....
    Karen, Rich and Ricky xxxx

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  29. All the best at this hard time. Here is hoping the call comes soon for Kirstie, and everyone who needs a transplant.

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  30. Just a well-wisher11 July 2011 at 00:46

    Hope it's okay to post this. On Live Life then Give Life FB page, they have just posted that Kirstie's transplant is going ahead. Thoughts to you all.

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  31. EXCELLENT, EXCELLENT, So looking forward to that next post! All the best, Dan. X

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  32. Thank you so much for sharing this with us all, are thoughts are with you, Kirstie and your family. Willing new lungs ASAP Hugs Lisa :) xx

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