Video blog
Thank you x
- Posted using BlogPress from my iPad
This blog has followed my life with cystic fibrosis, having had two double lung transplants, being placed on ecmo a form of life support, learning to walk and talk and facing chronic rejection twice. Along side this I'm a fitness pole dancing instructor, aerial hoop and silks instructor and personal trainer.
Sunday, 20 October 2013
Tuesday, 15 October 2013
Hospital survival packs, nominations here
A while back now I told you of my latest charity endeavour. Hospital survival packs. They are now ready to go out and I'm ready for nominations.
Firstly the idea of these packs is to brighten the dark boring day in hospital, to relax and pamper you when your not feeling your best.
So what do they include? Here's pictures of the women's and mens pack there will be 10 I'm all to give away.
The women's pack;
Cushion
Fleece blanket
Sleeping eye mask
Bomb cosmetics gift pack including- Love Soaked Dreams Soap Slice,
Crazy After Dark Bath Blaster, Hello Ducky Bath Creamer, Foam Alone Bath Blaster, Herbal High Body Lotion
A travel wash bag
Johnson's face wipes
Medicated lip balm
Dead Sea face mask
Court worlds lavender pillow most
Relaxing massage oil
2x batiste dry shampoo
3x mini tooth pastes
Tooth brush
Paint by numbers
Sketch pad
Drawing pencils
Crayola colouring pens and pencils
Note book
2x mosaic coaster kit
2x mini cross stitch
Decorate your own mug
Creat your own sock teddy
Mini game
Heroes chocolate collection
Lindt desert chocolate collection
Haribo super in
Haribo tang tastings
Amelia's chocolate
Chocolate coins
Walkers shortbreads
The mens pack
Cushion
Fleece blanket
Sleeping eye mask
Clinic mens skin supplies- shaving gel, scruff ing lotion, gel lotion, anti fatigue cooling eye gel, face scrub, post shave healer, wash bag
Johnson's face wipes
Medicated lip balm
Cotswolds lavender pillow most
Relaxing massage oil
3x mini tooth pastes
Tooth brush
Paint by numbers
Scrap foil
Airfix
Sketch pad
Drawing pencils
Crayola colouring pens and pencils
Note book
Decorate your own mug
Creat your own sock teddy
Mini game
Heroes chocolate collection
Lindt desert chocolate collection
Haribo super in
Haribo tang tastings
Amelia's chocolate
Chololate coins
Walkers shortbreads
Not all the items are shown in these pictures but most are.
So secondly nomination rules. If you think you or a loved one would like one of these packs then you can nominate yourself or them by commenting on this blog or private emailing me on kirstietancock@icloud.com I could like you to include your full name, your age (must be 17+) your illness/condition which causes you to spend a lot of time in hospital and if you could tell me a bit about yourself and your condition. Also please leave a email address so I can contact you if you have won.
You can have any condition/illness this is not specific for cf or transplant patients, the only stipulation Is that you spend a lot of time in hospital, these packs are created for people who are having a long admission or in and out of hospital. perhaps a rehabilitation from an accident or a life long condition.
Please share this blog, the more nominations I get the better so I can find somebody who truly needs a smile put on the face. The deadline for nominations is the 1st of December as I hope them to go out before Christmas.
Best wishes and thank you to all those who donates to this project, I'm so proud of it and looking forward to the smiles it will create.
- Posted using BlogPress from my iPad
Firstly the idea of these packs is to brighten the dark boring day in hospital, to relax and pamper you when your not feeling your best.
So what do they include? Here's pictures of the women's and mens pack there will be 10 I'm all to give away.
The women's pack;
Cushion
Fleece blanket
Sleeping eye mask
Bomb cosmetics gift pack including- Love Soaked Dreams Soap Slice,
Crazy After Dark Bath Blaster, Hello Ducky Bath Creamer, Foam Alone Bath Blaster, Herbal High Body Lotion
A travel wash bag
Johnson's face wipes
Medicated lip balm
Dead Sea face mask
Court worlds lavender pillow most
Relaxing massage oil
2x batiste dry shampoo
3x mini tooth pastes
Tooth brush
Paint by numbers
Sketch pad
Drawing pencils
Crayola colouring pens and pencils
Note book
2x mosaic coaster kit
2x mini cross stitch
Decorate your own mug
Creat your own sock teddy
Mini game
Heroes chocolate collection
Lindt desert chocolate collection
Haribo super in
Haribo tang tastings
Amelia's chocolate
Chocolate coins
Walkers shortbreads
The mens pack
Cushion
Fleece blanket
Sleeping eye mask
Clinic mens skin supplies- shaving gel, scruff ing lotion, gel lotion, anti fatigue cooling eye gel, face scrub, post shave healer, wash bag
Johnson's face wipes
Medicated lip balm
Cotswolds lavender pillow most
Relaxing massage oil
3x mini tooth pastes
Tooth brush
Paint by numbers
Scrap foil
Airfix
Sketch pad
Drawing pencils
Crayola colouring pens and pencils
Note book
Decorate your own mug
Creat your own sock teddy
Mini game
Heroes chocolate collection
Lindt desert chocolate collection
Haribo super in
Haribo tang tastings
Amelia's chocolate
Chololate coins
Walkers shortbreads
Not all the items are shown in these pictures but most are.
So secondly nomination rules. If you think you or a loved one would like one of these packs then you can nominate yourself or them by commenting on this blog or private emailing me on kirstietancock@icloud.com I could like you to include your full name, your age (must be 17+) your illness/condition which causes you to spend a lot of time in hospital and if you could tell me a bit about yourself and your condition. Also please leave a email address so I can contact you if you have won.
You can have any condition/illness this is not specific for cf or transplant patients, the only stipulation Is that you spend a lot of time in hospital, these packs are created for people who are having a long admission or in and out of hospital. perhaps a rehabilitation from an accident or a life long condition.
Please share this blog, the more nominations I get the better so I can find somebody who truly needs a smile put on the face. The deadline for nominations is the 1st of December as I hope them to go out before Christmas.
Best wishes and thank you to all those who donates to this project, I'm so proud of it and looking forward to the smiles it will create.
- Posted using BlogPress from my iPad
Thursday, 10 October 2013
Is it ok to want more?
Living with cystic fibrosis I always thought as a child and teenager I would be ready to die when death came. That I would be tired of the fight for life and ready to role over and let death happen. How naive I was. Me and my best friend Lou were on our way back from London yesterday and while we were driving along we started to talk about my transplant, as I often do at the moment. It's my way of unpicking at the seems of life, rummaging through the memory's, deciphering the codes in my head left from the trauma of it all. Because when your told your dying, when your so poorly you can barely stay awake, your brain starts to loose pieces of information along the way. It's like it decides what it can deal with and starts to throw out all the other stuff until you are back on the road to recovery and then you start to find all these lost memory's.
Memory's such as ringing my nan and telling her I wasn't going to get a second transplant and I wasn't going to make it. Nothing can prepare you for that conversation, not even your delusions as a teen that when death came you would be ready. Starting to relive those memory's, it's so painful, so raw, it's like going through them for the first time because each time you remember something else and it's all new again, the pain slices through you and the tears sweep my face.
I can only just remember the howling cry of my brother, even as I write about it, it feels so fresh so new and I want to reach Into my memory and wrap my arms around him And tell him how it all turns out ok.
I still don't remember all those conversations I made to so many of my close friends and family that day. I wonder if they will ever come back, part of me hopes they will stay hidden. Am I ever ready to deal with these moments of pain. There are still things I cannot remember from my first transplant and i am sure if they were to come back to me they wouldn't benefit me in anyway, they are hidden some where in the deep fog of protection, possibly just dropped out of my brain forever never to be found.
There is something else I have learnt from this experience, not only am I not ready to die but I'm finally ready to live. Now this may sound confusing for everyone, iv never shied away from life or walked away from an experience to be had but iv never thought I wanted to live to be old, joked about the fact I don't want wrinkles and simply thought that 50, 60 or 80 sounds to old. Sorry for those who are that age, but being young those ages do sound so old to me. Until the penny dropped, stu said to me today about sorting out his retirement fund. My reaction was to well up, I want to be there! I want to be with him when he retires, sending him off down the golf club in the day while I natter away to my friend Lou and go to the spa or some retirement like leisurely thing!
This may sound selfish of me, it does to me. It sounds like I'm simply wanting to much and I should just be grateful for every day I get, god I promise you I am. Sometimes though I catch myself wanting more and hoping I never have to relive those conversations with my friends, not just in my memory's but in real life.
- Posted using BlogPress from my iPad
Memory's such as ringing my nan and telling her I wasn't going to get a second transplant and I wasn't going to make it. Nothing can prepare you for that conversation, not even your delusions as a teen that when death came you would be ready. Starting to relive those memory's, it's so painful, so raw, it's like going through them for the first time because each time you remember something else and it's all new again, the pain slices through you and the tears sweep my face.
I can only just remember the howling cry of my brother, even as I write about it, it feels so fresh so new and I want to reach Into my memory and wrap my arms around him And tell him how it all turns out ok.
I still don't remember all those conversations I made to so many of my close friends and family that day. I wonder if they will ever come back, part of me hopes they will stay hidden. Am I ever ready to deal with these moments of pain. There are still things I cannot remember from my first transplant and i am sure if they were to come back to me they wouldn't benefit me in anyway, they are hidden some where in the deep fog of protection, possibly just dropped out of my brain forever never to be found.
There is something else I have learnt from this experience, not only am I not ready to die but I'm finally ready to live. Now this may sound confusing for everyone, iv never shied away from life or walked away from an experience to be had but iv never thought I wanted to live to be old, joked about the fact I don't want wrinkles and simply thought that 50, 60 or 80 sounds to old. Sorry for those who are that age, but being young those ages do sound so old to me. Until the penny dropped, stu said to me today about sorting out his retirement fund. My reaction was to well up, I want to be there! I want to be with him when he retires, sending him off down the golf club in the day while I natter away to my friend Lou and go to the spa or some retirement like leisurely thing!
This may sound selfish of me, it does to me. It sounds like I'm simply wanting to much and I should just be grateful for every day I get, god I promise you I am. Sometimes though I catch myself wanting more and hoping I never have to relive those conversations with my friends, not just in my memory's but in real life.
- Posted using BlogPress from my iPad
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