Sleepy girl

Radiation is exhausting! I feel very tired most if the time, I always thought it would be quit easy, I guess those who go through radiation are usually people with cancer and they also go through chemo so they don't really mention how bad radiation is because comparative to chemo it's a breeze to them. I have to say I hold my hat up to anyone who breezes through radiation and wish everyone an easy ride! To me it's exhausted me beyond belief and I am one tired sleepy girl. Part of my wonders whether I choose to sleep because when I am sleeping life's a little easier at the moment, my head doesn't pound, my body doesn't ache, the sickness is gone, my heart is calm and my breathing i can ignore and dream to a time when things were simpler. I guess I wonder whether I'm a little depressed, or whether it's just the treatment? I guess time will tell.

I'm missing my home now, but I know when I get back home things will be hard, it's a place that I realise more then anywhere that my lungs are so badly scarred now, because things are so much harder around your own home, there's stairs to climb, things to be done and you tend to move around alot more and then the breathlessness kicks in.

I try to not feel sorry for myself, but I am human, I can't help but sometimes think why me, why stu? I feel for him, my mum and everyone else around me. I feel like I'm a constant drain on them, in need of so much help and time. Last weekend my nan came and looked after me, that's never right, my nan is a strong amazing lady but she is getting old and deserves to be looked after now, I should be helping her. Instead all her time and effort is spent worrying about me and doing things to help me, my mum and stu.

I'm sorry to sound so down, I'm not really. I'm smiling, I'm still happy and I'm still loving life, but there are these moments, these rare moments when life is overwhelming and I'm filled with dread. I guess my blog could give you a clouded view of me sometimes, I write here when those moments come but mostly I still feel blessed and lucky. I'm lucky my family love me so much that there here to do so much for me and I guess I have to remember that must be a reflection on me some how, they must love me this much because I am a good person and a fun person. I just hope I can carry on being enough of a good, fun, loving person that they want to be round me forever and carry on making my life so amazing.


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Tummy bug, birthday, Neil's transplant

Well I have a few little updates. Just over a week now iv suffered from a stomach bug, it has been hideous, I have such a sensitive tummy anyway that it's really messed things up in there. I had some extremely high temps, faintness, sickness, diarrhoea , extremely bad stomach pain and general aches and pains. Im so glad to say the bug itself has now cleared up but Im still really weak and suffering badly from faintness, iv been to the doctors a few times this week having bloods done and they have taken really good care of me. Each time though iv had to be laid down and my legs elevated as I was so pale and faint. I'm just trying to build up my strength, resting but trying to do a bit more each day until my body gets used to it again.

My white cell count has dropped even more due to this bug, it was already low, at the moment there keeping a close eye but any lower and I have to go into hospital and have all my medication changed to get it back up. Having your white cell count to low means I'm to immune systems suppressed and if I were to catch anything else I would be extremely vulnerable.

With being so ill I've had a lot of panic attacks, this feeling of weakness has taken me back and has scared me a lot. It's not like me to have panic attacks.

It was Stuart's birthday yesterday and we did venture out for a couple of hours but that really took it out of me for today and we came back after finding out my white cell was low as I didn't want to risk being In crowds. We had a great day chilling out together and even that's a rarity these days with Stuart's work. So we thoroughly enjoyed just being together, well I certainly did. I love my hubby very much and find myself missing him all to often with the hours he works, hopefully that will get better soon! Stu was 28 yesterday and I found a grey eyebrow a few days ago :-D he he age doesn't scare me I find it encouraging, every year he's older I am to and therefore we are a year older together.


Today I had a text message at 2am, I didn't open it till 5am when I saw it there, it was from one of my greatest and best friends Neil. A guy I call bro. He has cf and he finally got his call last night! He pushed me around when I was in a wheel chair and I tried to do the same for him after my transplant when he got sicker, he was to stubborn and walked even though he was struggling. Neil was so sick recently he was in itu and I have to say I truly thought we were going to lose him. I don't know how I would have coped with that. Neil is now in surgery, today is the first day of the rest of his life. I hope my bro just gets the chance to live his life and do all the things he wants to, something he's never really been able to do. I'm so grateful to the person who gave him that chance, who signed the register and gave the greatest gift you can give, I'm grate full to there family for what they have done in such a tragic time and wish them all the love and strength in this horrible time. Thank you for saving my brothers life. Neil still has a long road ahead, so please with him a smooth recover and that he is home by Christmas with his little brothers and sisters so he can enjoy his favourite time of the year.


Im going down to Harefield Friday with a present for another friend who's had a extremely rough time and hope to see Neil. If I'm given the all clear from infection control as I would hate to jeopardise either of there recoveries.


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