tag:blogger.com,1999:blog-4891890415105870203.post8083309590311163200..comments2023-12-24T03:33:10.017-08:00Comments on 2nd chance @ life?: We'de like to offer you a place on the lung transplant waiting listAnonymoushttp://www.blogger.com/profile/14461907384160027436noreply@blogger.comBlogger34125tag:blogger.com,1999:blog-4891890415105870203.post-5033198071370220912011-03-30T17:48:56.478-07:002011-03-30T17:48:56.478-07:00Hi there like many others I spotted you on good ne...Hi there like many others I spotted you on good news and just wanted to tell you what an inspiration you are. I have read your blog from the start onwards and I must say you seem a very wise and brave person. love and best wishes xxxAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-28780249413366594252011-03-27T16:53:53.482-07:002011-03-27T16:53:53.482-07:00I know you may be getting a lot of this but I also...I know you may be getting a lot of this but I also suffer from c.f and know what the struggle can be like each and everyday but seeing you get the recognition you deserve gives us all the belief, your doing a great job!<br /><br />Also wanted to say thanks for writing the blog, it gets pretty dam lonely sometimes but being able to read your blog and relate to someone who knows what it is like is a massive help as well :) x xAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-57493088817131690412011-03-27T07:49:16.542-07:002011-03-27T07:49:16.542-07:00Just seeing you on telly made a great inpact on me...Just seeing you on telly made a great inpact on me i am on the doner's list and would love to be a doner for you so you can have a happy life with your fiancée :)stacienoreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-52760739807800786042011-03-27T06:33:51.304-07:002011-03-27T06:33:51.304-07:00Like so many others we saw you on Russell Howards ...Like so many others we saw you on Russell Howards Good News and was touched by your story and have come to wish you well, its fantastic to hear you have been put on the list, and I think that you will find no matter what its going to work out for you.<br /><br />You almost have a army backing you up now lots I expect who would be willing to give you one of their lungs, myself included. <br /><br />Be strong as you have been. We are all here for you in sprit.Ritchie Loney-Andersonhttps://www.blogger.com/profile/12205214828307019655noreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-52541290860737637822011-03-26T13:51:55.856-07:002011-03-26T13:51:55.856-07:00Hi Kirstie,
Like others, I saw you on Good News (...Hi Kirstie,<br /><br />Like others, I saw you on Good News (recorded as we were away) and I immediately looked you up to let you know that for years I have been unsure about joining the organ donor register and hoped my family would make the decision for me if the worst were to happen. Tonight, I have taken that decision out of their hands and signed up to the register (via your blog). The thought that you're struggling every day with CF and you would pass on any organs if the worst were to happen to you was really inspirational for me. <br /><br />Thank you for the gift you give to the world by your optimism and presence and I wish you the very best and hope for a long and happy future.Becky Boohttps://www.blogger.com/profile/14404170296483480835noreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-25570136474800420162011-03-26T02:55:57.757-07:002011-03-26T02:55:57.757-07:00Pleased to hear you are now on the waiting list. I...Pleased to hear you are now on the waiting list. Im a similar age and really dont think I could cope with, or go through what you have. As others have said, it puts our "problems" into perspective.<br /><br />The government should be paying for everything for you at the minute, take the money off the work shy bloke down the road who has a "bad back" but still manages to do cash in hand work and give it to someone like yourself who deserves it!<br /><br />Best of luck with everything.Shanenoreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-12587625127213784732011-03-25T17:30:28.303-07:002011-03-25T17:30:28.303-07:00Hi, I also seen you on Russell Howards Good News. ...Hi, I also seen you on Russell Howards Good News. <br />You are truly inspirational, <br />I have CF myself, not as bad as yours, and you have completely changed my views on things. I usually complain so much about how I'm always unwell, and when I see you being so strong It makes me feel I have no right to complain.<br /><br />It's great news about getting on the list! <br />I really hope everything goes smoothly and you can get on with your life :). <br /><br />Also, Im claiming esa, I know all the interviews are stressful but you should be ok!<br />I don't know if you have heard of The Butterfly Trust, their a charity that helps people with CF.<br />They have helped me out alot with everything to do with Esa, housing benefit and council tax benefit. You should get in touch with them if you aren't already :).<br /><br />Take care, stay strong! <br />Lauren xxx<br /><br />http://www.facebook.com/#!/profile.php?id=614760885Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-46980030789533790502011-03-25T17:29:35.781-07:002011-03-25T17:29:35.781-07:00You seemed to have mispelt early btw.You seemed to have mispelt early btw.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-20329271832355744342011-03-25T15:58:43.206-07:002011-03-25T15:58:43.206-07:00Hi, I'm another person who saw you on Russels ...Hi, I'm another person who saw you on Russels show the other night. Just wanted to say keep fighting and great news about the transplant list :-) best wishesJames_R5D4https://www.blogger.com/profile/16863045196614393483noreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-82827833525495485812011-03-25T15:18:56.801-07:002011-03-25T15:18:56.801-07:00Hi ya
Saw u on Russell Howard as well so looked up...Hi ya<br />Saw u on Russell Howard as well so looked up your blog asap, as my 11 week old baby girl was diagnosed with cf following newborn screening, you are truly an inspiration and such a brave lady. <br />Best wishes <br />Liz xxAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-25787883430451160962011-03-25T15:15:07.288-07:002011-03-25T15:15:07.288-07:00Hi. Like a lot of the other people on here I'v...Hi. Like a lot of the other people on here I've just seen you on the Russell Howard prog. I've added a link on my fb page asking people to consider joining the donor register. I'm a diabetes nurse and used to look after people with CFRD - one who went on to have a beautiful son and one who had a transplant that changed her life. I'm keeping my fingers crossed for you to get that call soon. Karen xKarennoreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-29151837839126698232011-03-25T14:57:16.917-07:002011-03-25T14:57:16.917-07:00My daughter, Page, says you must get better soon. ...My daughter, Page, says you must get better soon. xMatt Joneshttps://www.blogger.com/profile/14555332646397696123noreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-21867916688495975372011-03-25T14:55:44.114-07:002011-03-25T14:55:44.114-07:00Just a quick note to wish you lots of strength and...Just a quick note to wish you lots of strength and luck. My girlie is now 13 and although seemingly well, dealing with her CF, and yet I constantly worry what the future holds for her. I'm so glad to find you sharing your experiences. I look forward (if in slight trepidation) to catching up. Keep strong!Matt Joneshttps://www.blogger.com/profile/14555332646397696123noreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-77552915225428708312011-03-25T14:24:49.692-07:002011-03-25T14:24:49.692-07:00Dear Kirstie,
I also heard about your struggle on...Dear Kirstie,<br /><br />I also heard about your struggle on the telly.<br />I find your story so inspiring yet so sad too... though many people like myself will no doubt draw courage from your story because it puts their troubles into perspective it must seem terribly unfair that you are landed in this role without having asked for it. However, I guess the fact you want to raise awareness of your conditions means that this is a role you have in some ways accepted, which is commendable indeed. But it still isn't fair.<br /><br />I hope your blog gives you some freedom from the bordem of being in hospital all the time. I remember how boring it can be! And as a fellow pole dancing chick who is in love and full of things I want to do, I just wish there was something that could be done to give you your freedom. <br /><br />Look at me rabbiting on as if I know you! <br /><br />Anyway, I'll be following your blog from now on... and I think lots of people whether they know you personally or not care about you and wish you well.<br /><br />Stay strong lass.<br /><br />S xxxxSteffnoreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-84438239843977035482011-03-25T14:23:06.018-07:002011-03-25T14:23:06.018-07:00like everyone else here, i saw your blog mentioned...like everyone else here, i saw your blog mentioned on russell howards fb page and have just read it all... <br />I wish u the best of luck with your CF and transplant!! <br />Katie<br />(Ireland)Katie O'Brienhttps://www.blogger.com/profile/10928371618780024629noreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-49391697342131613362011-03-25T13:51:10.808-07:002011-03-25T13:51:10.808-07:00People like Citizens Advice Bureau are brilliant f...People like Citizens Advice Bureau are brilliant for helping with ESA forms, there should be a support service (free) in your area, ask your local (town or borough) council.<br /><br />Good luck xxxemmylou1602https://www.blogger.com/profile/05412346651404863836noreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-46559328846022749802011-03-25T13:41:29.128-07:002011-03-25T13:41:29.128-07:00I just wanted to say good luck :-)
I read through...I just wanted to say good luck :-)<br /><br />I read through your blog with tears in my eyes, it kinda brought back memories. My Dad had a liver transplant in November last year, and I remember just how traumatic it was for everyone. I remember the day he got accepted onto the list like it was yesterday, we were all in tears. Tears of relief. <br /><br />And I also remember that feeling of being on edge waiting for the phone to ring once you are on the list, I guess thats what you are going through now. <br /><br />I really hope everything goes well for you, I will be following. Massive hugs to you xxxxUnknownhttps://www.blogger.com/profile/00661004862263291503noreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-81784897806251044192011-03-25T13:30:31.614-07:002011-03-25T13:30:31.614-07:00Same as a lot of people here saw you on Russell Ho...Same as a lot of people here saw you on Russell Howards Good News.. I wish you all the best for the future and I will be checking your page regularly now.. You are a very strong woman.. best wishes Alison :0)Alisonnoreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-72506915791616108062011-03-25T13:28:31.622-07:002011-03-25T13:28:31.622-07:00hi, i saw you on russell howards good news and i t...hi, i saw you on russell howards good news and i think you are such a brave girl. shocked to find that you actually live quite near me!! keep on fighting and we're all here for you!! xAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-85177478570287539332011-03-25T13:05:05.988-07:002011-03-25T13:05:05.988-07:00Same as Stacey, I saw this from Russell's Face...Same as Stacey, I saw this from Russell's Facebook page. Good luck for the future. You definitely deserve a break.<br /><br />I do not know what else to say other than I hope you get what you deserve. People take so much for granted these days, it is humbling to read your story. I have never suffered a serious problem (bar a broken wrist so I had to wipe by bum with the other hand). Your story will give so many people strength. Respect to you always.Marknoreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-14276536784429574552011-03-25T13:03:42.348-07:002011-03-25T13:03:42.348-07:00Hi Kirstie, like some of the people above I also s...Hi Kirstie, like some of the people above I also seen you on Good News and wanted to look you up and wish you well.<br /><br />It's great to hear your now on the list and so positive and thinking of others. I wish you all the best and good health for the future and pray everything works out for you.<br /><br />Paul :)Paulhttp://www.facebook.com/m0tSiEnoreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-84215351254595402052011-03-25T12:53:54.796-07:002011-03-25T12:53:54.796-07:00I just came across this after the link was posted ...I just came across this after the link was posted on Russell Howard's facebook page. This absolutely breaks my heart as a close friend of mine has Cystic Fibrosis. She's only 17 but has been in hospital more this year than I have been in my entire life...<br /><br />I hope everything goes smoothly with the transplant when it comes around.Staceyhttps://www.blogger.com/profile/02650813951783223355noreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-44085125714314496992011-03-25T06:04:13.575-07:002011-03-25T06:04:13.575-07:00Hi, I also saw you last night on Russell Howard...Hi, I also saw you last night on Russell Howard's Good News and had to drop you message - you are truely inspirational! I am so glad to hear that you are now on the waiting list! I've posted links on my Facebook and Twitter feeds to spread the word about organ donation. I am also thinking about handing out leaflets to people on the street to spread the word further, I've had a look on the organ donation website and it seems like they can give me free stickers and leaflets which is great! I hope everyone reading this will give it a try!<br /><br />All the best<br />ChelleChelle and Andyhttps://www.blogger.com/profile/00192548613154668477noreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-66688608754747883612011-03-25T00:58:08.327-07:002011-03-25T00:58:08.327-07:00Hello Kirstie I am so pleased for you I was thnkin...Hello Kirstie I am so pleased for you I was thnking about you all day yesturday and my dad was saying his prays for you. I really hope everything works out for you and lets hope your team will be able to put a plan together so you can get home and be comfortable with your breathing. It was nice to see you in person yeasturday (Wendesday) and you are such a lovely young lady who deserves the best. Hugs and kisses Rachel xRachelnoreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-1402199769582444402011-03-24T23:06:16.725-07:002011-03-24T23:06:16.725-07:00Hi Kirstie
As with others, I saw you on Russell H...Hi Kirstie<br /><br />As with others, I saw you on Russell Howard's show last night and made a note to find your blog. I think it's the first time I've ever been moved enough to do that.<br /><br />Amazing news that you've been offered a place on the transplant waiting list. Forgive my ignorance, but I'm not sure what that means in itself - could the call now come any day, or is it likely to be weeks or months before you get it? I'd assume the list is prioritised? Would be great to learn more about that if you feel like writing another post soon.<br /><br />On another note, my parents live in Sidbury, just down the road from you, so I pass through Honiton quite a lot when I'm down in Devon visiting them. Beautiful part of the world.<br /><br />Anyway, good luck with everything. Have signed up to your RSS feed and, if you don't mind, I'll be passing your blog around my Twitter network today.<br /><br />Take care.<br />PaulAnonymoushttps://www.blogger.com/profile/17220187236457196522noreply@blogger.com