tag:blogger.com,1999:blog-4891890415105870203.post2336222522856047327..comments2023-12-24T03:33:10.017-08:00Comments on 2nd chance @ life?: ITU and all the nitty grittyAnonymoushttp://www.blogger.com/profile/14461907384160027436noreply@blogger.comBlogger18125tag:blogger.com,1999:blog-4891890415105870203.post-21520758575922363232013-01-23T04:30:29.637-08:002013-01-23T04:30:29.637-08:00This is my first time i visit here. I found so man...This is my first time i visit here. I found so many entertaining stuff in your blogbusiness card designhttp://www.bluefiber.co.uk/business-stationery-design.htmlnoreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-40339656084097761972012-10-31T04:09:09.543-07:002012-10-31T04:09:09.543-07:00Wot an inspiration you are it's also nice to s...Wot an inspiration you are it's also nice to see a young couple so committed to each other as u and stu are I'm a tough trucker lol but your doc had me in tears at times the way u battled but still remained happy good luck to u both Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-61246792377940152122012-10-22T05:04:23.022-07:002012-10-22T05:04:23.022-07:00You really know your stuff... Keep up the good wor...You really know your stuff... Keep up the good work!donate carhttp://www.sympathy.org.uk/lets-donate-unwanted-items.htmlnoreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-89512036709973562992012-10-21T06:41:44.047-07:002012-10-21T06:41:44.047-07:00I used to hate suction too. I had had surgery on m...I used to hate suction too. I had had surgery on my abdo and lungs so coughing hurt and suctioning is never pleasant. But as you say, without it, you suffer set backs. Depending upon your level of being awake and ability to move your arms, some physio can teach you to suction yourself, which can give you a feeling of a little more control. My first admission was 3 months and I was unable to lift my arm high enough, but subsequent admissions, have been much calmer, which makes things easier.<br /><br />But yeh, make sure the staff know if something is up, even if you can talk. Bang the rails on the bed till they listen. Dont suffer alone.Bitter_Angelhttps://www.blogger.com/profile/04575126047702158106noreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-43193371216439127822012-10-15T04:00:32.374-07:002012-10-15T04:00:32.374-07:00Kirstie I'm waiting for a transplant and I wou...Kirstie I'm waiting for a transplant and I would rather know what to expect than having everything glossed over. It is a great help to know some reality of what may happen. The thing to hold on to is that you got through it all and now life is better. xxxKathrynhttps://www.blogger.com/profile/18314204660820473571noreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-5834109319634087232012-10-14T14:22:35.591-07:002012-10-14T14:22:35.591-07:00I certainly hope so! I always wonder whether it a ...I certainly hope so! I always wonder whether it a good thing to tell everything. Do you potential scare people out of doing something that is going to be life changing and amazing or are you helping and preparing? But I got asked so I guess it helps. XxAnonymoushttps://www.blogger.com/profile/14461907384160027436noreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-3284246486727591272012-10-14T13:27:36.434-07:002012-10-14T13:27:36.434-07:00I really like this blog Kirstie and love reading t...I really like this blog Kirstie and love reading these type ones as they provide a really good insight in to what could happen and I feel more prepared for when mine actually happens. And if it turns out to be less traumatic it's a bonus :o) xoxoAnonymoushttps://www.blogger.com/profile/04999021526201181770noreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-18864676461271093322012-10-13T16:23:10.130-07:002012-10-13T16:23:10.130-07:00Such an interesting read. I had my tx 7 yrs ago an...Such an interesting read. I had my tx 7 yrs ago and was in itu for a week. My experience was very different so reading how you got on was very insightful. I didn't have hallucinations (and now feel very lucky indeed!) but I became very afraid of dying. Which was odd after being so ill for so long and not being afraid! I didn't want to go to sleep at night incase I didn't wake up. I was already on medication for depression so I think that kept the worst at bay but I had up and down days thanks to the steroids and the adjustment to breathing without a machine!<br /><br />It's a major thing to go through that many people will never experience. And at a relatively young age. It's all part of what makes us stronger. I'm so glad you made it thru your dark days and can share your story. This highlights how important emotional support is post-tx. It's important that people awaiting a transplant understand that there's still a way to go once the op is done, physically and emotionally. By reading a blog like yours anybody who has a similar experience can know that they're not alone, and that they can get thru it. Like you did.xSiannoreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-25856265597600447802012-10-13T15:47:19.598-07:002012-10-13T15:47:19.598-07:00I have been vented a few times in the past after a...I have been vented a few times in the past after a bad asthma attacks and the memories of me waking for a few minutes (apparently they stop sedition for a while to work out what your body can do) the thoughts I had was I can breath with little effort after the struggle of the asthma attack, was able to relax. I also remember hearing voices. I also remember waking up during something not sure what they were doing and I felt disconnected from my body my mind was normal but my body didn't feel like mine. <br />The worst bit found with the whole ITU experience is having someone watching over you the whole time when been awake in ITU I wake up every time someone comes near me and get anxious when they are doing things to me and not telling me (ie taking abg)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-84019385839461530152012-10-13T13:00:38.672-07:002012-10-13T13:00:38.672-07:00Plz feel free to comment, it's nice to hear ot...Plz feel free to comment, it's nice to hear others experiences xAnonymoushttps://www.blogger.com/profile/14461907384160027436noreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-33607545242474487572012-10-13T12:59:55.068-07:002012-10-13T12:59:55.068-07:00Thnk u xThnk u xAnonymoushttps://www.blogger.com/profile/14461907384160027436noreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-87864069044096998312012-10-13T12:59:33.835-07:002012-10-13T12:59:33.835-07:00Itu is a scary place smooth or not. I'm glad ...Itu is a scary place smooth or not. I'm glad your experience was relatively tho. A diary is a great idea, I wish I had that xAnonymoushttps://www.blogger.com/profile/14461907384160027436noreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-77077452163576672312012-10-13T12:58:35.347-07:002012-10-13T12:58:35.347-07:00Ilium glad my blog has been able to help u, I cn c...Ilium glad my blog has been able to help u, I cn certainly relate with the anxiety of a nippy. XxAnonymoushttps://www.blogger.com/profile/14461907384160027436noreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-41086246244289275602012-10-13T12:55:57.986-07:002012-10-13T12:55:57.986-07:00This is all I hope to do thank u xThis is all I hope to do thank u xAnonymoushttps://www.blogger.com/profile/14461907384160027436noreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-91179834036077574592012-10-13T11:42:52.218-07:002012-10-13T11:42:52.218-07:00As usual Kirstie,absolutely brilliant,well done! I...As usual Kirstie,absolutely brilliant,well done! I can add that I have gone through those same hallucinations,fears and being distressed and scared without entering ITU.I have to wear a nippy and I do not get on with it sometimes and I can wake up gagging,sweating and fealing very alone.What you say about your support is so spot on, I do not have that but I do have the support of an internet site of fellow sufferers and it is very important to me as if I am having a rough time I just post on the site and sure enough up comes empathy,sympathy,support and advice born of their own experiences and that pulls me through. I would like to add that reading your posts and blogs have been as much a support as theirs have and I have been able to pass on your experiences to other people who have also benefited, so thanks for me and thanks for them,I hope all your job plans and your dreams for the future come to fruition and I look forward to reading about your experiences and successes, God Bless you,keep smiling, I will not sign off in my usual way as I have not asked you if I can name the site so I will just sign K. xxxAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-8214231050146813122012-10-13T11:18:48.277-07:002012-10-13T11:18:48.277-07:00I had a much smoother stay in ICU but suffered fro...I had a much smoother stay in ICU but suffered from lots of hallucinations both in ICU & then on the ward, so I know how scary they can be. In terms of not knowing what is real & what isn't (& also missing things/forgetting things due to being so ill), my mum kept a diary which I found v helpful to be able to look back at to fill in the gaps.<br /><br />Take care,<br />MollyTotohttps://www.blogger.com/profile/17340295088051098469noreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-82677749502502863472012-10-13T10:45:48.560-07:002012-10-13T10:45:48.560-07:00Thank you for doing this so much. A great indepth ...Thank you for doing this so much. A great indepth description which has helped me deal with my times in itu, showing its normal and ways to deal with it after. Please sleep tonight knowing you have helped someone so much by sharing your story. I'll be forever thankful xAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4891890415105870203.post-87217296472429968232012-10-13T10:44:19.215-07:002012-10-13T10:44:19.215-07:00Great blog Kirsty,Insightful, realistic and honest...Great blog Kirsty,Insightful, realistic and honest.<br /><br />LisaAnonymousnoreply@blogger.com